What is CDH?

Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia

Yesterday my unborn child was diagnosed with a rare birth defect called Congenital Diaphragmatic Hernia (CDH). This is a condition where the development of the diaphragm does not complete, leaving a hole large enough for one or more abdominal organs to push through into the upper body cavity. This is a very rare condition affecting only 1 in 2,500 pregnancies.

In it’s most serious state, the child’s lungs may never be able to fully form and it will be fatal. In the best cases, after birth the child can expect multiple corrective surgeries to move the organs back into the correct position. Even in the best cases survival rate is between 60% – 90%.

My child does appear to fall into the favorable category, but we will need to monitor lung growth on an ongoing basis.

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